When it comes to a long-lasting disease like psoriasis, your relationship with your doctor is important. However, during your consultations it can be difficult at times to discuss all you need to about your disease in the short time you have together.
In this website, you will find information to help you prepare for your next visit with your doctor. The information provided here can ensure that you can communicate everything that matters to you about your psoriasis in an effective manner, maximising the time you have with yout doctor.
The PSORIASIS IMPACTS MATTER Guide is a tool, available on this website, that provides you with a step-by-step guide on how to better communicate with your doctor during consultations—to help you both work toward managing your psoriasis and help you live your life as fully as possible.ABOUT PSORIASIS
Psoriasis is more than a disease of the skin, and symptoms can vary greatly from one person to another.1 Being aware of how your psoriasis affects you is the first step to managing your condition well.
Psoriasis starts inside your body. Your immune system mistakenly attacks parts of your body. This causes excessive inflammation, which is believed to cause psoriasis.1
Because psoriasis is long-lasting, it requires continuous management. Symptoms may disappear for a while, but they are likely to reappear if not managed properly.1,2
When you have psoriasis, you may be at a higher risk of developing other long-lasting conditions. Tell your doctor if you suffer from diabetes, high blood pressure, heart problems, or joint pain, as they might be related to your psoriasis. Your doctor will check your health regularly and will adjust your treatment plan to meet your needs.1,3
When you speak with your doctor, or any member of your healthcare team, feel free to discuss anything going on in your day-to-day life that you think may be impacted by your psoriasis. There are many effects of psoriasis that cannot be seen, but can affect how your doctor decides on your treatment. Talk to your doctor about all the ways that psoriasis impacts your life.
As a person living with the chronic condition that is psoriasis, you know your body better than anyone else.
It is important to be aware of all the aspects of psoriasis. Start by answering the 3 questions below:
How does psoriasis feel?
Jot down how you would describe your condition: painful, embarrassing, stressful, draining, limiting, stops me from pursuing activities that I enjoy, stops me from dating or having intimate relationships, etc.
Where is your psoriasis located?
Sometimes it’s difficult for your doctor to see all the affected areas or your body, so be sure to be explicit about where plaques have occurred. Use the diagram in PSORIASIS IMPACTS MATTER to label the affected areas of your body and bring it to your next visit.
What aspects of psoriasis bother you the most?
Is it physical symptoms, like itch or difficulty sleeping? Are you unable to pursue activities you enjoy, like swimming or going to the beach? Is dating or intimacy particularly challenging? Are the emotional effects most challenging, like feeling alone or helpless?
It’s important to let your dermatologist know all the ways in which psoriasis is impacting you.
References: 1. National Psoriasis Foundation. Patient navigation center: plaque psoriasis. October 2017. https://www.psoriasis.org/sites/default/files/
plaque_fact_sheet.pdf. Accessed September 6, 2019. 2. National Psoriasis Foundation. Patient navigation center: psoriasis. October 2017. https://www.psoriasis.org/sites/
default/files/psoriasis_fact_sheet_0.pdf. Accessed September 6, 2019. 3. National Psoriasis Foundation. T2T Infographic. https://www.psoriasis.org/sites/default/files/
t2t_infographic.pdf. Accessed September 6, 2019. 4. Lebwohl MG, Bachelez H, Barker J, et al. Patient perspectives in the management of psoriasis: results from the population-based Multinational Assessment of Psoriasis and Psoriatic Arthritis survey. J Am Acad Dermatol. 2014;70(5):871-881.e1-30.