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Patient Stories

Here are some examples of how other people with psoriasis discuss their condition and treatment with their doctors.

See how other people describe their visible psoriasis and the invisible physical, emotional, and social impact of it in their everyday lives.

See how other people describe their visible psoriasis and the invisible physical, emotional, and social impact of it in their everyday lives.

Eleanor’s Story

Eleanor’s Story

When I first noticed I had symptoms of psoriasis at 18 years old, it was mainly on my upper thighs and hips. In the last 9 months or so, since I’ve been trying to go to the gym more, I’ve started to develop tight, red patches in places I didn’t think I would ever get psoriasis.

I’m trying to lose some weight and get more fit by going to the gym, but the psoriasis down there is making it painful and uncomfortable from the itch.

Sex was painful, and when I did have it, my skin would be even more dry afterwards and I would have more flare ups. I had just started a new relationship, but I ended it when I developed the patches because I felt so self-conscious and I didn’t want my new partner to see me or touch me.

I also had to stop my self-care down there, as I found shaving or waxing further irritated my skin. I’ve been using steroid creams and emollient-based soaps to clean myself, which provide some temporary improvement, but I want something that helps me more long term.

I had grown to accept that I had psoriasis on my body, and I was able to manage and cope with that. But now it’s on my genitals—I am so unhappy. Some days, it’s even affecting the way I walk! Is this how it’s going to be, that I’m going to be uncomfortable in such an intimate area forever?

My best friend urged me not to put up with this. She works at a clinic and found a questionnaire about my symptoms and all that I’m going through. It helped me open up to my doctor about how much it’s affecting me. It was a big step in the right direction.

Jim’s Story

Jim’s Story

I’ve had psoriasis since I was a kid—35 years. I used to put up with it because it didn’t affect my life too much—just patches on my elbows and chest—and it would flare every so often, which I mostly covered up with a t-shirt.

But recently my scalp has become so itchy and flaky. I can’t wear dark tops anymore because the flakes on my shoulders become even more obvious. It’s so embarrassing.

My finger has swollen up, too. I am in constant pain. Obviously, as a plumber I use my hands all day, and I can’t slow down—competition for work is tough; just one bad review and you’re out of work!

 

I’ve started to worry about my weight, as well. My flaky scalp means I order dinner in a lot, and I know that that type of food’s not the healthiest—it’s just that I’d rather avoid going out. I can’t remember the last time I went to a restaurant. My friends ask me why I never see them anymore.

And my son, he’s just turned 12. I thought he was no longer at risk, as he’s a bit older than I was when it started, you know? But he started getting the patchy white flakes on his legs. My son’s almost a teenager so he can’t be isolating himself. I have to set a good example.

I had to do something. I decided to have a frank discussion with my doctor. Tell him how this is really affecting my life. Yes, it was embarrassing, but really worth it, I think.

 

PSORIASIS IMPACTS MATTER